New Studies Guide Timing of End-of-Life Care Conversations

Hospice News

Researchers recently found that “trigger systems” signaling when a patient may need palliative care can boost utilization of those services, as well as advance care planning and hospice admissions. Identifying triggers for palliative care.

Deathwives Founders: Death Doulas Fill End-of-Life Care Gaps, Ease Strain on Hospice Staff

Hospice News

More people are stepping into death doula work, according to founders of the Colorado-based organization Deathwives. Many come striving for change after witnessing loved ones receive poor end-of-life care or enduring bereavement without support.

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Tulsa End of Life Care

Seasons Hospice

Tulsa End of Life Care. Seasons Hospice is here to provide the best possible Tulsa end-of-life care for you and your loved ones. Our team of experienced and compassionate professionals will be there for you every step of the way.

Dehydration and End-of-life Care

Hospice of the North Coast

There are several common causes of dehydration. It is important to understand how hydration and dehydration impact end-of-life care. Common Causes Of Dehydration. Hot, humid weather increases the amount you sweat and the amount of fluid you lose.

Urgent call to end postcode lottery of 24/7 end of life care for seriously ill children

Together for Short Lives

The post Urgent call to end postcode lottery of 24/7 end of life care for seriously ill children appeared first on Together for Short Lives

End-of-Life Care: Your Patient Has Died, Now What?

Hospice Nurse Hero

I will make a small commission if you make a purchase through one of these links, at no extra cost to you. End-of-life care is intimate and unique for every patient. Regardless of the situation, your role is to comfort the family and take care of the patient.

Can I Include End of Life Care Wishes in My Will?

Seasons Hospice

Make Your End Of Life Wishes Known. However, drafting a will is an important step in ensuring that your wishes are carried out and your loved ones are taken care of after you’re gone. If You or Your Loved One Is In Hospice Care, Be Proactive.

Anthony’s Christmas with Santa

The Bucket-List Blog

Some of the patients in these stories are no longer with us. For those who have since passed, we share these in their memories with deep appreciation for what they have taught us about life and living. Anthony is a young man under our care.

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New Study Delves Into Nurses’ Concerns About Medical Aid in Dying (MAiD)

Daily Nurse

RN, collaborated on two studies released by the American Nurses Association’s Center For Ethics and Human Rights and the University of California San Diego Health that include the perspectives of more than 2,374 nurses in the United States on Medical Aid in Dying (MAiD).

Death doulas as supportive companions in end-of-life care: A scoping review

SAGE Palliative Medicine & Chronic Care podcast

This episode features Si Qi Yoong (National University of Singapore, Singapore). There is uncertainty about its roles, scope of practice, regulation and position within the healthcare system. This review clarifies the uncertainty of the death doula movement in terms of its roles, impacts of care and regulation issues. This review identifies five common roles death doulas undertake when providing non-clinical care to support the dying and their families.

To Celebrate 100 Years of Life

The Bucket-List Blog

Some of the patients in these stories are no longer with us. For those who have since passed, we share these in their memories with deep appreciation for what they have taught us about life and living. For the family of Rowland Moore, the milestone was bittersweet.

Blog 83

The Best Biscuit Breakfast

The Bucket-List Blog

Some of the patients in these stories are no longer with us. For those who have since passed, we share these in their memories with deep appreciation for what they have taught us about life and living. Harold Eversole is cared for by our home hospice program.

Blog 52

To Be Thanked for My Service

The Bucket-List Blog

Honoring those who have served our country is one of our greatest joys. Not everyone understands how important it can be for a veteran to be formally recognized for their service, especially as the end of life nears.

Blog 83

To Get a Tattoo

The Bucket-List Blog

For Deloris, it was about including a daughter she adopted later in life to the tattoos she already had that honored her other children. Our hospice-home care team could tell it meant a lot to her, so they got to work. We all have bucket lists, right?

Blog 83

To Have Coffee with an Old Friend

The Bucket-List Blog

One of Fred’s wishes was simple: go back home again, see Sam, and have a cup of coffee in his favorite spot on the couch. We’ve cared for Fred at home for several months. He chose to come to our Compassionate Care Center, where we’d work to get his symptoms under control.

Blog 83

To Marry the Love of My Life

The Bucket-List Blog

This summer, in the middle of a pandemic and while my soon-to-be husband was receiving hospice care, I married the love of my life. For most of them, we were married. But Junann, our hospice chaplain, said, “God makes a way out of no way.” A Letter from Ann.

Blog 83

To Preserve & Share a Song

The Bucket-List Blog

Some of the patients in these stories are no longer with us. For those who have since passed, we share these in their memories with deep appreciation for what they have taught us about life and living. All her life, Lois Harrison used the gift of her voice to express and share her faith. But, now in the advanced stages of Parkinson’s disease, Lois could no longer speak. How can you honor life during National Hospice & Palliative Care Month?

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To See Her Daughter’s Marriage

The Bucket-List Blog

We met Nancy through her mother who was in our care at the Compassionate Care Center. During a conversation with Nancy one of our nurses, Teresa VanCamp Dickson learned that she felt sad that her mother wouldn’t be with her for her wedding in June. .

Blog 81

Perspectives on End of Life Care: An Exploration of Its Past, Present and Future - A Conversation with Dr. Janet Bull

Healthcare Law Insights podcast

As we approach the 40th anniversary of the Medicare hospice benefit, we stand at an important reflection point to evaluate end-of-life care and map its future. In this new series, we gather leaders and thinkers from a range of disciplines to explore our needs at the end of life, how they have changed over time and how care models need to adapt. Janet has devoted the second half of her medical career to end-of-life care.

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Paramedics delivering palliative and end-of-life care in community-based settings: A systematic integrative review with thematic synthesis

SAGE Palliative Medicine & Chronic Care podcast

This episode features Madeleine Juhrmann (Northern Clinical School, University of Sydney, Sydney, NSW, Australia. HammondCare Centre for Learning and Research in Palliative Care, Greenwich Hospital, Greenwich, NSW, Australia). Global demand for palliative care is increasing and the reliance on exclusively specialist hospital-based care is becoming unsustainable.

Millennial Caregiver Looks Back on 6 Years with Mom

Solace

Jacqueline Revere, “ momofmymom ” on social media, was just 29 when a phone call interrupted her “best life” in New York. Her mother was just 59 when doctors found evidence of Alzheimer’s disease.

WE MIGHT NOT BE SO SURE…

HospiceDiary

I have made my best attempt to find adequate palliative care research being done on managing end-of-life secretions (“the death rattle” people often refer to), and I cannot say I have read sufficient … Continue reading → end of life care dying; bedside vigil; hospiceI find myself in another paradoxical debate.

A Loving Journey Through Dementia

Solace

I’ve known my mother’s love of shopping, her gift of gab, her artistic talents, her fondness for flora and fauna, and her outrageous sense of humor. We would travel this downhill journey of life together and it would be alright.

‘Saying goodbye’ during the COVID-19 pandemic: A document analysis of online newspapers with implications for end of life care

SAGE Palliative Medicine & Chronic Care podcast

This episode features Dr Lucy Selman (Palliative and End of Life Care Research Group, Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK). Clinicians and funeral officiants have tried to mitigate the impact of infection control measures, for example, using video-technology; however, this has not been done consistently and its acceptability is unknown.

To See a Movie in the Theater

The Bucket-List Blog

Elizabeth’s care team got together with her family to make a plan. She was able to watch the entire film from the comfort of her stretcher, provided by Madison County EMS. It seemed to all of us that she used all the resources left to her to make it to, and through, that film.

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What is Memory Care?

Solace

When care at home is no longer adequate for someone with dementia or Alzheimer’s disease, it may be time to move to a long-term facility outside the home. According to the Alzheimer’s Association, there’s no “ one-size-fits-all ” formula for choosing the right care.

The impact of COVID-19 on our views and experiences of death and dying

Hospice Volunteering

The COVID-19 pandemic has caused over 700,000 deaths world-wide and resulted in millions of casualties. Has it led to a greater understanding and acceptance of death as a part of life? Or has it increased our fear of dying, as people witness the devastation COVID has wrought in long-term care homes and other congregate facilities? How has COVID-19 impacted your experience of death and dying?

2020 100

Palace of Care – No More

Palliverse

If you were to have a life threatening infection I would not recommend you to have it treated. “No No treatment of infection please.”. “If Doing so will help us when it comes to prescribing the right doses of medication.”. FOAMPal #PallANZ Clinical Practice end of life care

REMEMBRANCE

HospiceDiary

Many years ago I stood at the edge of the Meuse-Argonne American Cemetery in France. I looked out over the vast numbers of white crosses, as far as the eye could see. end of life careMemorial Day is a day to remember fallen heroes. Beneath those nearly 15,000 gravestones lay the US servicemen and women who died mostly […].

Nutrition at End of Life

Changing Lives Podcast

Human nature compels us to nurture our loved ones in many ways, feeding being one method - however it is important to recognize that nutrition at the end-of-life is much different than how people eat prior to illness.

What is Hospice Palliative Care

Changing Lives Podcast

Hospice Quinte has been delivering quality hospice palliative care in our communities, at no charge, since 1985. Learn more about this special kind of health care in this week's Changing Lives podcast.

Hospice Quinte’s Companionship Programs

Changing Lives Podcast

Our trained and compassionate volunteers can support those who are bereaved or caring for a loved one who is terminally ill with weekly phone calls. In 2020 Hospice Quinte introduced two new programs – Bereavement Companionship and Caregiver Companionship.

2020 52

Integrating lived experiences of out-of-hours health services for people with palliative and end-of-life care needs with national datasets for people dying in Scotland in 2016

SAGE Palliative Medicine & Chronic Care podcast

This episode features Professor Scott Murray (Primary Palliative Care Research Group, University of Edinburgh, Scotland, UK). People living at home with advanced progressive illness require well-coordinated services at all times of the day and night. Early identification for generalist palliative care support and care planning in the community can improve outcomes but requires effective information sharing across services.

How to Support People with Dementia?

Sahara Hospice Care

Dementia is one of the most common illness a lot of elderly people get. People that have to care for dementia patients can become very challenging along the way. Having good communication skills will enhance the amount of interaction you can achieve with a dementia patient.

2021 52

Integrating lived experiences of out-of-hours health services for people with palliative and end-of-life care needs with national datasets for people dying in Scotland in 2016: a mixed methods, multi-stage design

SAGE Palliative Medicine & Chronic Care podcast

This episode features Professor Scott Murray (Primary Palliative Care Research Group, University of Edinburgh, Scotland, UK). People living at home with advanced progressive illness require well-coordinated services at all times of the day and night. Early identification for generalist palliative care support and care planning in the community can improve outcomes but requires effective information sharing across services.

PANDEMICS MERELY HIGHLIGHT NURSING HOME PREDICAMENT

HospiceDiary

Though it seems of late there is just too much. A recent visit to a nursing home reminded me … Continue reading → end of life careA wise saying: There is nothing new under the sun. Suffering is our human condition; we all have some experience with it.

2020 52

“People don’t understand what goes on in here”: A consensual qualitative research analysis of inmate-caregiver perspectives on prison-based end-of-life care

SAGE Palliative Medicine & Chronic Care podcast

This episode features Rachel Depner (Palliative Care Institute, The Center for Hospice & Palliative Care, New York, USA). She reports on her study which aimed to (a) describe a prison-based end-of-life program utilizing inmate peer caregivers, (b) identify inmate-caregiver motivations for participation, and (c) analyze the role of building trust and meaningful relationships within the correctional end-of-life care setting.

2018 40

HELPLESS

HospiceDiary

I’ve had many moments of observing the steady slowing and final stopping of a heart beat. I’ve had countless times to share a patient’s frightening sense of vulnerability as bodies cheat their owners and life becomes uncertain with death a … Continue reading → end of life care

2021 40

THE WORST PATIENT/DIFFICULT FAMILY?

HospiceDiary

Here’s a couple reasons why: nurses invariably assume the role of caregiver in both their careers AND their lives. They historically … Continue reading → end of life care caregiver roles hospice biasNurses, not infrequently, have been labeled (very often by other nurses) as “the worst patients; the difficult family member”.

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Dying in the hospital setting: A meta-synthesis identifying the elements of end-of-life care that patients and their families describe as being important

SAGE Palliative Medicine & Chronic Care podcast

This episode features Claudia Virdun (Faculty of Health, University of Technology Sydney (UTS), Ultimo, NSW, Australia) who describes a study which aimed to gain a richer and deeper understanding of elements of end-of-life care that consumers consider most important within the hospital setting. The take home message is that patients and carers have been consistent in the factors that they consider important in end of life care.

2017 40

NEVER GIVE UP

HospiceDiary

I am concerned about a new mantra afoot: that palliative care–unlike hospice care– is not “giving up” but is addressing improved symptom management and quality of life (QOL) for all patients with advanced disease.

2019 52

What is the impact of population ageing on the future provision of end-of-life care? Population-based projections of place of death

SAGE Palliative Medicine & Chronic Care podcast

This episode features Anna Bone (Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King’s College London). This study aimed to project where people will die from 2015 to 2040 across all care settings in England and Wales. Age- and gender-specific proportions of deaths in hospital, care home, home, hospice and ‘other’ were applied to numbers of expected future deaths. and 88.6%, with care home the most common place of death by 2040.

2017 40

“HE WHO CANNOT, TEACHES”

HospiceDiary

As I thought about who and what have been my greatest teachers in life, I considered the quote: He who can, does; He who cannot, teaches*. Though this quote is considered disparaging to teachers, I like to think of it … Continue reading → end of life care

2019 40