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Caring for Someone with ALS

Traditions Health

In this article, we review the definition of ALS, common ALS symptoms, and how you can better help and support your loved one by seeking the assistance of hospice care services. Eventually, all the muscles that a person can control are affected, forcing the person to use a ventilator and/or feeding tube. What is ALS?

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Can I Include End of Life Care Wishes in My Will?

Seasons Hospice

In your living will, you should clearly state your preferences for medical treatment, including life-sustaining measures such as artificial ventilation and feeding tubes. When it comes to end-of-life wishes, there are definitely some that will not be honored in a living will. Who you want to make decisions on your behalf.

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The Language of Serious Illness: A Podcast with Sunita Puri, Bob Arnold, and Jacqueline Kruser

GeriPal

I think one of the residents you asked how would they broach a subject, and he said wording like, “Unfortunately, he still needs a ventilator.” ” You talk about this too, even in your own training, where even around CPR, the training is like he might need a ventilator if he couldn’t protect his airway.

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Miscommunication in Medicine: A podcast with Shunichi Nakagawa, Abby Rosenberg and Don Sullivan

GeriPal

Because, if anybody hasn’t seen it, you’ve got a great Twitter feed that gives tons of pearls on palliative care and a lot on communication. Yeah, I think we took a pretty broad definition in the article, but really it’s any failure to communicate clearly and adequately. What motivated you to dive into this?

Article 352
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Aging and the ICU: Podcast with Lauren Ferrante and Julien Cobert

GeriPal

And Lauren Ferrante has found in a study published in JAMA Internal Medicine that trajectories of disability in the year prior to ICU admission were highly predictive of disability post-ICU, on the same order of magnitude as mechanical ventilation. He, his Twitter feed though is brilliant. Eric: Yeah. Alex: Yeah. Eric: Yeah.

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POLST Evidence and Update: Kelly Vranas, Abby Dotson, Karl Steinberg, and Scott Halpern

GeriPal

And whether tube feeding should be on there, that’s never an emergency decision. I can on one hand count the patients I’ve cared for who didn’t want mechanical ventilation. Kelly: Yeah, no, definitely. But yeah, full treatment. But I just want to, Scott, I guess we just disagree on this. Abby: Yeah.

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Comics and Humor in Palliative Care: A Podcast with Nathan Gray

GeriPal

However if you want to take a deeper dive, check out his website “ The Ink Vessel ” or his amazing twitter feed which has a lot of his work in it. If you look back to some of my cartoons from late in residency, they showed just how dehumanized I felt and definitely give windows into how dehumanized I imagined my patients to be.