August, 2017

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Enteral feeding in Motor Neurone Disease/Amyotrophic Lateral Sclerosis: Patients’ perspectives and impact on quality of life

SAGE Palliative Medicine & Chronic Care podcast

This episode features Suresh Kumar Chhetri (Preston MND Care and Research Centre, Department of Neurology, Royal Preston Hospital, Lancashire Teaching Hospitals NHS Foundation Trust, Preston, UK) who describes a study which aimed to explore patients' experience of enteral feeding and its impact on quality of life. The study was a questionnaire based prospective analysis of 21 MND patients receiving enteral feeding followed at 3, 6 an 12 months post gastrostomy.

Feeding 40
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Flying High

The Bucket-List Blog

Conley Murray has always loved adventure. In fact, as one of our home hospice patients, he recently talked with his Hospice Care Plus chaplain, Sally Shepherd, about the adventures in his life. At one point, Sally asked him what adventures he still has on his bucket list. Because you never stop dreaming and hoping, even, or maybe especially, when you know you’re in your final months of life.

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Electronic Palliative Care Co-Ordination Systems (EPaCCS): devising and testing a methodology for evaluating documentation

SAGE Palliative Medicine & Chronic Care podcast

This episode features Professor Matthew Allsop (Leeds Institute of Health Sciences, University of Leeds, Leeds, UK) who describes a study that outlined and applied an evaluation framework to examine how and when electronic documentation of advance care planning is occurring in end of life care services. The study extracted data from electronic palliative care coordination systems for 82 of 108 general practices across a large UK city.